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Families for the Treatment of Hereditary Motor Neuron Disease

# Episode Title Description People Date
1 What are the Issues in Familial MND? Professor Martin Turner, University of Oxford, gives an introduction to the conference, and outlines some of the research his group has been doing on understanding familial MND and how they can treat it. Martin Turner 17 Apr 2019
2 Getting Tested: Experience from the Genetic Clinic Professor Anneke Lucassen, University of Southampton, gives the second talk fo the day, looking at her research and experience from studying the genetics related to MND Anneke Lucassen 17 Apr 2019
3 The Value of Online Shared Experiences Professor Louise Locock and Jade Howard, Univesity of Aberdeen, give the third talk in the day's event, looking at patient's experiences of motor neuron disease and how patients and families share their experiences online Louise Locock, Jade Howard 17 Apr 2019
4 Early Genetic Trials in MND: The Sheffield SOD1 Experience Professor Christopher McDermott, University of Sheffield, gives the fourth talk in the day's event, and, along with Dani Baird, a person living with MND and a participant in the SOD1 trial, discuss her experieces in the trial. Christopher McDermott, Dani 17 Apr 2019
5 The Future of Treating Genetic MND Professor Kevin Talbot, University of Oxford, gives the fifth and final talk in the day's event, looking at the future of genetic MND and what the future holds for it. Kevin Talbot 17 Apr 2019